We were about a dozen of women, gathered around a smiling
and dynamic hairstylist, in a workshop called “Look good, feel better”, also
the name of a charity supporting women dealing with cancer. She was there,
volunteering her time to give us advices on how to use make up and deal with
our problematic hair situation. There was a teenager (non-Hodgkin lymphoma) who
came with her mother and sister, next to a 60 something lady wearing a red
fedora, who had by her side a young woman who was going to start chemo after a
lung surgery.
We all introduced ourselves, saying our first name and our
type of cancer. Melissa, the volunteer, gave away some make up products that
had been donated to the charity. Among the good tips she shared with us: she
showed us how to draw eye brows that would look natural – in case ours were to
vanish in the chemo storm. How to tie up the bottom half of a T-shirt and wrap
it around your head as if it was a scarf – but easier to wash than a scarf. And
where to find this good wig store, which offers cheap yet good quality wigs, in
Lakewood, in a shady neighborhood (“do
not go there at night”). Melissa found a
pink long wig there, costing only $75, that she wore at a Lady Gaga concert. A
great price for a wig.
I also learned a lot by listening to my peers. “When your hair fall, said one of them, it is
actually painful!” I was stunned. Wasn’t emotional pain enough? Several
participants agreed. “It is an awful sensation”, said the woman sitting next to
me (brain tumor) who still had thick gray hair. “You know, when you were a
little girl and had a pony tail, and then another kid would pull it? It is that
way, constantly. As if someone was pulling your hair.” The lady with the red
fedora shook her hair, looking incredulous. Obviously, this had not been her
experience.
Another participant was a stage 4 ovarian cancer. I shuddered – stage 4 had hovered over my
diagnosis last month. I was not the only one. We all knew that stage 4 is the
more serious, last stage. But she swept our fear away. “I was diagnosed with
stage 4 ten years ago. Statistics and numbers don’t mean a thing. Each person
is different. I have been in remission for years. Now cancer is back – I don’t
know why.” What she knew, though, is the reason why hair often grows back with
a different texture and curly. “Chemo has this perm effect on the skull and the
roots of the hair. But after it has regrown, eventually, the effect goes away
and you have your hair back.”
On Youtube, I had listened to the advices of this woman – an
actress I think. I followed her advice to have my hair cut extra short before
they would actually fall, after the first chemo. She lost her hair on the very
day they were supposed to go away, precisely two weeks after her chemo. She
happened to be in a hotel when it happened and it was overwhelming, she said.
She was so relieved she did not have to clean it up herself. Her advice was to
follow her example and go to a hotel – although it would be pretty strange to
check in a hotel close to home and wait there for your hair to fall.
Mine have
not actually been that punctual. Two weeks after the chemo, I was expecting to
get up with a completely hair-free and shiny head. No- my short hair was still
here. They are now going away, little by little. Where are they? I don’t see
any on my shoulders, the scarfs, or my pillow. Are they disappearing into
nothingness?
I visited the wig store with a girlfriend pastor. I bought
two long wigs and a short one. None is pink so far, but I keep my options open
for the future. Spring is coming up and it is now too warm for my hat with bear
ears. I also play with scarfs.
Yesterday I was walking in a grocery store with Irvin. I
felt an aggravating sensation above my neck. As if… someone was pulling on my
hair. Oh boy… They were right! Spring or not, this is the time of the decisive fall…
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